H.R. 5469: SHINE for Autumn Act of 2025
Sponsor
Young Kim
Republican · CA-40
Bill Progress
Latest Action · Sep 18, 2025
Referred to the House Committee on Energy and Commerce.
Why it matters
The bill responds to long-standing complaints that the U.S. does not collect consistent enough stillbirth data to better understand causes, risks, and prevention.
H.R. 5469 would give the federal government a bigger role in helping states collect better stillbirth data. The basic idea is simple: if doctors, health departments, and researchers gather more complete and standardized information, they may be better able to spot patterns, understand risk factors, and improve care. Right now, data can be patchy and inconsistent from state to state, which makes national research harder.
The bill lets the Secretary of Health and Human Services award grants to states for stillbirth surveillance, data collection, and public health analysis. States could use existing data sources, like fetal and infant mortality review programs, and build stronger systems to assess and report risk factors. It also requires that the data be deidentified, meaning personal information about patients and providers cannot be disclosed.
Beyond raw data, the bill pushes HHS to issue guidelines for health departments and vital records offices on how to collect stillbirth information more consistently. That includes, with the mother's consent, gathering relevant details such as clinical history, postmortem findings, and placental pathology. HHS would also create public educational materials about stillbirth and consult with doctors, nurses, public health officials, mental health professionals, bereavement groups, statisticians, and people who have personally experienced stillbirth.
The bill does not create new direct medical benefits or treatment coverage. Its focus is research, public health infrastructure, and awareness. If enacted, its impact would likely be gradual rather than immediate: better records first, then better research, and only over time possibly better prevention strategies and clearer guidance for families and providers.
What does H.R. 5469 do?
State grants for stillbirth tracking
Allows HHS to give grants to states to track stillbirths, collect data, and support research and public health work.
Risk factor reporting
Supports state collection and reporting of stillbirth risk factors, including measurable outcomes linked to those risks.
Privacy protections for collected data
Requires that all data collected under the program be deidentified and handled in line with federal and state privacy laws.
National guidelines for better reporting
Directs HHS to issue guidelines to state health departments and vital records offices on how to collect and report stillbirth data more completely and consistently.
Public education materials on stillbirth
Requires HHS to develop and publish educational awareness materials about stillbirths and stillbirth risk factors.
Five-year public report
Requires HHS to publish a public report within five years that includes educational guidelines and stillbirth awareness materials.
Who benefits from H.R. 5469?
Families affected by stillbirth
They may get clearer information, more public awareness, and eventually better answers about causes and risk factors.
State health departments and vital records offices
They could receive federal funding and guidance to improve how they collect, analyze, and report stillbirth data.
Researchers and public health experts
They would have access to more standardized, higher-quality data to study stillbirth trends and possible prevention strategies.
Doctors, nurses, and maternal health providers
They could benefit from clearer reporting standards and better educational materials to support patient care and counseling.
Who is affected by H.R. 5469?
Pregnant women and their families
They could be asked, with consent, to allow more clinical information to be used for stillbirth reporting and research.
Health care providers
They may face updated expectations for submitting stillbirth-related information to state systems.
State governments
States would have the option to apply for grants and may need to upgrade data systems, staff training, and reporting practices.
HHS and federal public health agencies
They would be responsible for creating guidelines, consulting experts and families, publishing educational materials, and overseeing grant programs.
H.R. 5469 Common Questions
How much money does the SHINE for Autumn Act provide for stillbirth data collection?
The SHINE for Autumn Act of 2025 authorizes $5,000,000 a year for FY2026-FY2030 for state grants on stillbirth surveillance, data collection, and risk-factor reporting (Section 2).
How much funding does H.R. 5469 provide for stillbirth education materials?
According to H.R. 5469 Section 2, HHS may use $1,000,000 a year for FY2026-FY2030 to develop and publish stillbirth educational awareness materials and guidelines.
When would HHS have to publish the stillbirth guidelines report under the SHINE for Autumn Act?
Under the SHINE for Autumn Act of 2025, HHS must post a public report on its website no later than 5 years after enactment (Section 3).
Does the SHINE for Autumn Act require consent before collecting stillbirth data from a mother?
Yes. Under the SHINE for Autumn Act of 2025, HHS guidelines must address collecting stillbirth data from providers only with the consent of the woman who experienced the stillbirth (Section 2).
Can states use fetal and infant mortality review data under H.R. 5469?
Yes. According to H.R. 5469 Section 2, state grants may support surveillance and data collection using State or sub-State Fetal and Infant Mortality Review data.
What stillbirth data would HHS guidelines tell states to collect?
Under the SHINE for Autumn Act of 2025, guidelines may cover clinical history, postmortem examination findings, and placental pathology, with the mother's consent (Section 2).
Does H.R. 5469 protect patient and doctor privacy in stillbirth records?
Yes. According to H.R. 5469 Section 2, all collected data must be deidentified, with no disclosure of individually identifying information about a patient or the patient's health care provider.
Can SHINE for Autumn Act grants be used to track stillbirth risk factors and outcomes?
Yes. Under the SHINE for Autumn Act of 2025, grants may fund collection and reporting of stillbirth risk factors and quantifiable outcomes tied to those risks (Section 2).
Which state agencies would get stillbirth reporting guidelines under the SHINE for Autumn Act?
According to H.R. 5469 Section 2, HHS must issue guidelines to State departments of health and State or local vital statistics units.
Does the SHINE for Autumn Act include bereavement groups and families in HHS consultations?
Yes. Under the SHINE for Autumn Act of 2025, HHS may consult bereavement and burial-support organizations, mental health professionals, and individuals who have experienced a stillbirth (Section 2).
Based on H.R. 5469 bill text
Cost & Funding
Authorization: $6 million per year for FY2026-FY2030, totaling $30 million authorized
- —$5 million per year is authorized for state stillbirth surveillance, data collection, and risk factor studies.
- —$1 million per year is authorized for federal guidelines and educational awareness materials.
- —These are authorizations, not guaranteed spending; Congress would still need to appropriate the money.
HR5469 Legislative Journey
House: Committee Action
Sep 18, 2025
Referred to the House Committee on Energy and Commerce.
About the Sponsor
Young Kim
Republican, California's 40th congressional district · 5 years in Congress
Committees: Foreign Affairs, House Select Committee on the Strategic Competition Between the United States and the Chinese Communist Party, Financial Services
View full profile →
Cosponsors (78)
This bill has 78 cosponsors: 53 Democrats, 25 Republicans, reflecting bipartisan support. Cosponsors represent 27 states: Arizona, California, Colorado, and 24 more.
Kathy Castor
Democrat · FL
Robin Kelly
Democrat · IL
David Joyce
Republican · OH
David Valadao
Republican · CA
Zachary Nunn
Republican · IA
Mike Carey
Republican · OH
Timothy Kennedy
Democrat · NY
Paul Tonko
Democrat · NY
Mikie Sherrill
Democrat · NJ
Ashley Hinson
Republican · IA
Bonnie Watson Coleman
Democrat · NJ
Becca Balint
Democrat · VT
Committee Sponsors
Energy and Commerce Committee
19 of 54 committee members cosponsored
24 Republicans across this committee haven't cosponsored yet. Mobilize their constituents
H.R. 5469 Quick Facts
- Committee
- Energy and Commerce
- Chamber
- House
- Policy
- Health
- Introduced
- Sep 18, 2025
Referred to the House Committee on Energy and Commerce.
Sep 18, 2025
Who is lobbying on H.R. 5469?
4 organizations lobbying on this bill
NEMOURS FOUNDATION - A FLORIDA NOT-FOR-PROFIT CORPORATION | 2 |
MARCH OF DIMES | 2 |
ASSOCIATION OF WOMEN'S HEALTH OBSTETRIC AND NEONATAL NURSES | 1 |
AMERICAN MEDICAL ASSOCIATION | 1 |
Showing 1-4 of 4 organizations
H.R. 5469 Bill Text
“To improve research and data collection on stillbirths, and for other purposes.”
Source: U.S. Government Publishing Office
Get notified when H.R. 5469 moves
Committee votes, floor action, cosponsor changes — straight to your inbox.
Bill alerts + Legisletter's monthly briefing. Unsubscribe anytime.
Health Bills
9 related bills we're tracking
Give Kids a Chance Act of 2025
Motion to reconsider laid on the table Agreed to without objection.
Dec 1, 2025
Improving Seniors’ Timely Access to Care Act of 2025
Referred to the Committee on Ways and Means, and in addition to the Committee on Energy and Commerce, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
May 20, 2025
CONNECT for Health Act of 2025
Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
Jun 26, 2025
Right to Contraception Act
Referred to the House Committee on Energy and Commerce.
Feb 5, 2025
Medicare Patient Access and Practice Stabilization Act of 2025
Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
Jan 31, 2025
Chiropractic Medicare Coverage Modernization Act of 2025
Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
Jan 16, 2025
988 LGBTQ+ Youth Access Act of 2025
Referred to the House Committee on Energy and Commerce.
Sep 17, 2025
Ensuring Lasting Smiles Act
Referred to the Committee on Energy and Commerce, and in addition to the Committees on Education and Workforce, and Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
May 8, 2025
Pride In Mental Health Act of 2025
Referred to the House Committee on Energy and Commerce.
Jun 5, 2025
Trending Right Now
Bills gaining momentum across Congress
Healthy Families Act
Referred to the Committee on Education and Workforce, and in addition to the Committees on House Administration, and Oversight and Government Reform, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
Feb 12, 2026
Federal Extreme Risk Protection Order Act of 2026
Referred to the House Committee on the Judiciary.
Feb 17, 2026
ALERT Act
Referred to the Committee on Transportation and Infrastructure, and in addition to the Committee on Armed Services, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
Feb 20, 2026
Tracking Health in Congress? Monitor bills, track cosponsor momentum, and launch advocacy campaigns — all from one advocacy platform.